Website: Researchgate
Heilpädagogik / Inclusion Studies
Prosetzky, I. (2024): Interaction of loneliness with chronic illnesses and disabilities - with a special focus on conditions of mental disability. Expertise 09 for the Loneliness Competence Network.
Silter, K.; Hilkenmeier, J.; Beck, I.; Franke, N.; Prosetzky, I. (2023): Perceived burdens and resources of people with and without disabilities during the first COVID-19-related lockdown in Germany: First results of an international survey. Journal for Inclusion, 3.
Sideropoulos, V.; Van Herwegen, J.; Meuleman, B.; ... Prosetzky, I. ...; Samson, A.C. (2023): Anxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditions. Journal of Global Health 13:0408. DOI: 10.7189/jogh.13.04081
Prosetzky, I. (2019): The category 'friendship' in cultural-historical theory - suggestions for/by researching the Williams-Beuren syndrome?! In: Yearbook of the Luria Society 2019, 61-91, ISBN: 978-3-96543-081-5
Prosetzky, I. (2019): Report from the visit to the WSA National Convention 2018 in the USA. In: Wir üBer unS/Umschau. Journal of the Federal Association WBS. Issue 47, 54-57.
Prosetzky, I., Danielsmeier, V. (2018): Buildung a Competence Center for Wiliams Syndrome at the Hochschule Zittau/Görlitz - Current Research, Teaching and Third Mission. ACC Journal, Vol. 24, Issue 3, DOI: 10.15240/tul/004/2018-3-010
Prosetzky, I. (2017): University didactic reflections on the (in)compatibility of diagnostics and inclusion. In: Römer, S. (ed.): Diagnostics as relationship design. Entering into, reflecting on and shaping relationships - diagnostics in dialog and cooperation. Berlin, Frank & Timme, 81-124.
Prosetzky, I. (2014): More than the sum of its symptoms: On the cultural-historical neuropsychology and pedagogy of Williams-Beuren syndrome. Berlin: Lehmanns Media. Publication series International Cultural-historical Human Sciences. Volume 48.
Prosetzky, I. (2013): General developmental levels and domain specificity. In: G. Feuser; J. Kutscher & B. Siebert (Eds.): Development and Learning. Vol. 7 of the Encyclopaedic Handbook of Disability Education "Disability, Education and Participation". Stuttgart: Kohlhammer, 103-114.
Prosetzky, I. (2009): Isolation and participation. In: M. Dederich & W. Jantzen (ed.): Behinderung und Anerkennung. Vol. 2 of the Encyclopaedic Handbook of Disability Education "Disability, Education and Participation". Stuttgart: Kohlhammer, 87-95.
Institute for Transformation, Housing and Social Spatial Development (TRAWOS)
WS-iReach research network
Scientific Advisory Board of the Williams-Beuren Syndrome Federal Association e.V.
German Interdisciplinary Society for the Promotion of Research for People with Intellectual Disabilities e. V.
Luria Society. Association for the promotion of the scientific foundation and rehabilitation of brain-damaged people e.V.
since 2015 Professor at the Faculty of Social Sciences, Zittau/Görlitz University of Applied Sciences
2014-15 Lecturer in the Department of Inclusive Education, University of Bremen
2007-14 Specialist for psychological counseling and diagnostics at Elbe-Werkstätten GmbH/Nord, Hamburg
Website: Researchgate
Williams Syndrome (WS) is a rare neurodevelopmental disorder caused by a deletion of ~26 genes on chromosome 7q11.23 (Hillier et al., 2003), which occurs in 1 of 7,500 live births (Strømme, Bjørnstad, & Ramstad, 2002). The WS phenotype is typically associated with moderate intellectual disability, specific “elfin” facial structure and physical anomalies cardiac problems, hyper social behavior, anxieties, and a need for lifelong support (Pober, 2010, Royston, Waite & Howlin, 2019). The WSS belongs to the group of rare diseases (according to the European Union if less than five out of 10,000 people are affected).
Current research focuses mainly on clinical characteristics, thus providing important implications for medical management. Parents, therapists and professional caregivers are able to find very few usable implications for everyday-life challenges though.
Our team is comprised of researchers and clinicians who specialize in behavioral and/or educational outcomes and interventions for individuals with Williams syndrome.
Weitere Infos: WS iREACH
The junior research group »WBS in Resonance« was founded in 2016 by Ingolf Prosetzky and Vera Danielsmeier at the HSZG. The term "resonance" stands for an intersubjective "attunement" that is a central aspect of experience for individuals with WS (Prosetzky, 2014). The core group consists of students from the Bachelor's course in Special needs education/Inclusion studies.
More information: www.hszg.de/wbs
How to improve the quality of life of people with Williams Syndrome? Comment améliorer la qualité de vie des personnes porteuses du Syndrome de Williams? – Assessing the Needs for Tailored Supports (04/2019 - 04/2021, TRAWOS-Institut)
Initiation of International Collaboration – Enhancing Understanding of Friendship Development, Feelings of Loneliness, and Experiences of Social Victimization Among Individuals with Williams Syndrome to Inform Research and Improve Outcomes for Individuals with Intellectual Disability (04/2019 - 04/2021, TRAWOS-Institut)
Loneliness, social vulnerability and their psychological complications under conditions of intellectual disability - Williams-Beuren syndrome (WBS) as a key to understanding the development of the concept of "friendship"? (04/2019 - 12/2021, TRAWOS-Institut)
Development, programming and design of two apps to support children and adolescents with the WS (02/2020-12/021)
Prosetzky, I. (2019): „Friendship and Loneliness – WS Regional Conference/Family meeting at the University of applied sciences Zittau/Görlitz (in German). In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 47, 72-76.
Prosetzky, I. (2019): Report from the visit to the WSA National Convention 2018 in the USA (in German). In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 47, 54-57.
Prosetzky, I. (2019): The “Friendship” category in the Cultural-historical theory – suggestions for/through the Williams syndrome research. (in German) In: Jahrbuch der Luria-Gesellschaft 2019, 61-91, ISBN: 978-3-96543-081-5
Siegert, A.; Prosetzky, I. (2019): EAMHID- Congress to strengthen municipal cooperation between researchers, professional helpers, people with intellectual disabilities and their families. (in German) In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 47, 40-43.
Prosetzky, I., Danielsmeier, V. (2018): Buildung a Competence Center for Wiliams Syndrome at the Hochschule Zittau/Görlitz – Current Research, Teaching and Third Mission. ACC Journal, Vol. 24, Issue 3, DOI: 10.15240/tul/004/2018-3-010
Danielsmeier, V.; Prosetzky, I. (2018): WS Regional Conference/Family meeting at the University of applied sciences Zittau/Görlitz (in German). In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 46, S.78-79.
Prosetzky, I. (2018): Selected impulses for the concrete pedagogical support of individuals with WS. Report from International Meeting on Williams-Beuren Syndrome "Building our Future" in Madrid/Spain. (in German) In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 46, S.34-35.
Danielsmeier, V.; Groba, L.; Prosetzky, I. (2017): New research group from University of applied sciences Zittau/Görlitz starts research series at the 2017 National German WS Convention (in German). In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 45, S. 72-74.
Prosetzky, I. (2017): Current pedagogical and everyday life relevant knowledge about the WS. (in German) In: Wir üBer unS/Umschau. Zeitschrift des Bundesverbandes WBS. Heft 45, S.70-71.
Prosetzky, I. (2014): More than the sum of his symptoms: The cultural-historical neuropsychology and pedagogy of the Williams-Beuren-Syndroms. (in German) Berlin: Lehmanns Media. Schriftenreihe International Cultural-historical Human Sciences. Band 48.
Prosetzky, I.: The challenges of teaching individuals with rare neurodevelopmental disorders in inclusive school setting – The case of Williams syndrome and how we can learn from each other. 09. December 2019, Masaryk University Brno (Oral presentation).
Prosetzky, I.: On the way to a more well-rounded understanding of the whole person with Williams syndrome – Lev Vygotsky and Alexander Luria’s cultural-historical neuropsychology approach. 01.October 2019, Michigan State University (Oral presentation).
Danielsmeier, V.: What do you need? How do you cope? Including everyday experience of patients and their professional caregivers in the development of suited health care programs for rare diseases. National Conference about rare diseases, 26.-27. September 2019, Berlin (Poster presentation).
Prosetzky, I.: Friendship and Loneliness – For a better understanding of social behavior under conditions of Williams Syndrome. II. WS Regional Conference/Family meeting, 11. May 2019, HSZG, Görlitz (Oral presentation).
Prosetzky, I.: The “Friendship” category in the Cultural-historical theory – suggestions for / through the Williams syndrome research Luria-Gesellschaft, 31. March 2019, Villa Ichon Bremen (Oral presentation).
Prosetzky, I.: Current pedagogical and everyday life relevant knowledge about the WS. I. WS Regional Conference/Family meeting, 21. April 2018, HSZG, Görlitz (Oral presentation).
Danielsmeier, V.: Towards a tailored support for Williams Syndrome. Learning from individual everyday life experience A holistic multiperspective Mixed Methods study. International Meeting on Williams-Beuren Syndrome "Building our Future". 10.-11. November 2017, Genral Hospital La Paz Madrid (Poster presentation).
Danielsmeier, V. (2017): Understanding Auditory Aversions in Williams Syndrome. A Longitudinal Mixed Methods Approach. International Meeting on Williams-Beuren Syndrome "Building our Future". 10.-11. November 2017, Genral Hospital La Paz Madrid (Poster presentation).
Danielsmeier, V. (2017): Wie erleben Personen mit Williams-Beuren-Syndrom Ängste gegenüber Geräuschen? 13. Berliner Methodentreffen Qualitatve Forschung, 21.-22. July 2017, Freie Universität Berlin (Poster presentation).
Prosetzky, I.: Current pedagogical and everyday life relevant knowledge about the WS – Insights into selected international research studies. Bundestreffen des Bundesverbandes WBS e.V., 21.05.2017, Sternhotel in Willingen (Oral presentation).
More information TRAWOS-Institut
More info soon.
Öffentliche Ringvorlesung im Wintersemester 2017/18 »Das Bundesteilhabegesetz und seine (möglichen) Folgen für die Region«, Hochschule Zittau/Görlitz
Williams-Beuren syndrome (WBS) is a rare neurodevelopmental impairment that is often associated with mental retardation, heart defects, a special facial structure ("elfin face"), hypersocial behavior, anxiety and lifelong support needs (Pober, 2010, Royston, Waite & Howlin, 2019). It is based on a randomly occurring deletion of around 26 genes on chromosome 7q11.23 (Hillier et al., 2003). The prevalence is 1:7,500 (Strømme, Bjørnstad, & Ramstad, 2002). WBS belongs to the group of rare diseases (according to the European Union, when fewer than five in 10,000 people are affected).
The genetic, neurobiological and medical basis of WBS is now relatively well researched, but there is a lack of educational knowledge relevant to everyday life, which would be extremely helpful for people with WBS, their relatives and professional caregivers.
Podcast
Our team is comprised of researchers and clinicians who specialize in behavioral and/or educational outcomes and interventions for individuals with Williams syndrome.
Further information: WS iREACH
The junior research group "WBS in Resonance" was founded in 2016 by Ingolf Prosetzky and Vera Danielsmeier at the HSZG. The term "resonance" stands for an intersubjective "resonance", which is a central aspect of the experience for people with WBS (Prosetzky 2014). The core group includes students of the Ba degree program in Special Education/Inclusion Studies from various matriculants.
For further information see www.hszg.de/wbs
Wie kann man die Lebensqualität von Personen mit dem WBS verbessern/Comment améliorer la qualité de vie des personnes porteuses du Syndrome de Williams? - eine Bedarfsanalyse für maßgeschneiderte Unterstützungsmaßnahmen (04/2019 - 03/2021, TRAWOS-Institut)
Loneliness, social vulnerability and their psychological sequelae under conditions of intellectual disability - The WBS as a key to understanding the development of the concept of "friendship"? (04/2019-12/2021, TRAWOS-Institut)
Building international cooperation: Better understanding the development of friendships, feelings of loneliness and victimization in individuals with WBS! (04/2019-04/2021, TRAWOS-Institut)
Development, programming and design of two apps to support children and young people with WBS (02/2020-12/21)
Challenges, resources and goals in everyday life with Williams Beuren syndrome - a needs analysis for tailored support measures (05/2017 - 12/2017, TRAWOS Institute)
Prosetzky, I. (2019): "Friendship, loneliness and social vulnerability" - WBS symposium at the Zittau/Görlitz University of Applied Sciences. In: Wir üBer unS/Umschau. Journal of the Federal Association WBS. Issue 47, 72-76.
Prosetzky, I. (2019): Report from the visit to the WSA National Convention 2018 in the USA. In: Wir üBer unS/Umschau. Journal of the Federal Association WBS. Issue 47, 54-57.
Prosetzky, I. (2019): The category 'friendship' in cultural-historical theory - suggestions for/by researching the Williams-Beuren syndrome?! In: Yearbook of the Luria Society 2019, 61-91, ISBN: 978-3-96543-081-5
Siegert, A.; Prosetzky, I. (2019): EAMHID Congress on strengthening community collaboration between researchers, professionals, people with intellectual disabilities and their families. In: We about you/Umschau. Journal of the Federal Association of WBS. Issue 47, 40-43.
Prosetzky, I., Danielsmeier, V. (2018): Buildung a Competence Center for Wiliams Syndrome at the Hochschule Zittau/Görlitz - Current Research, Teaching and Third Mission. ACC Journal, Vol. 24, Issue 3, DOI: 10.15240/tul/004/2018-3-010
Danielsmeier, V.; Prosetzky, I. (2018): WBS family meeting and symposium at the Zittau/Görlitz University of Applied Sciences. In: Wir üBer unS/Umschau. Journal of the Federal Association WBS. Issue 46, pp.78-79.
Prosetzky, I. (2018): Selected impulses for concrete pedagogical support of persons with WBS. Report from the International Meeting on Williams-Beuren Syndrome "Building our Future" in Madrid/Spain. In: Wir üBer unS/Umschau. Journal of the Federal Association of WBS. Issue 46, p.34-35.
Danielsmeier, V.; Groba, L.; Prosetzky, I. (2017): New research group at Zittau/Görlitz University of Applied Sciences launches research series at the Federal Association Meeting 2017/. In: We about us/Umschau. Journal of the Federal Association WBS. Issue 45, pp. 72-74.
Prosetzky, I. (2017): Current pedagogical and everyday findings on WBS. In: Wir üBer unS/Umschau. Journal of the Federal Association of WBS. Issue 45, pp.70-71.
Prosetzky, I. (2014): More than the sum of its symptoms: On the cultural-historical neuropsychology and pedagogy of Williams-Beuren syndrome. Berlin: Lehmanns Media. Publication series International Cultural-historical Human Sciences. Volume 48.
Prosetzky, I.: Towards a tailored support for Williams syndrome. Learning from individual everyday life experience. A holistic multiperspective mixed methods study. Seattle Club Conference, 17.12.2019, University College London (lecture).
Prosetzky, I.: The challenges of teaching individuals with rare neurodevelopmental disorders in inclusive school setting - The case of Williams syndrome and how we can learn from each other. 09.12.2019, Masaryk University Brno (lecture).
Prosetzky, I.: On the way to a more well-rounded understanding of the whole person with Williams syndrome - Lev Vygotsky and Alexander Luria's cultural-historical neuropsychology approach. 01.10.2019, Michigan State University (lecture).
Danielsmeier, V. (2019): What do you need? How do you cope? Including everyday experience of patients and their professional caregivers in the development of suited health care programs for rare diseases. National Conference on Rare Diseases, 26-27.09.2019, Berlin (Poster).
Prosetzky, I.: Friendship and loneliness - Towards a better understanding of social behavior under conditions of Williams-Beuren syndrome. WBS symposium, 11.05.2019, HSZG Görlitz (lecture).
Prosetzky, I.: The category 'friendship' in cultural-historical theory - suggestions for/through research into Williams-Beuren syndrome? Luria Society, 31.03.2019, Villa Ichon Bremen.
Prosetzky, I.: Current pedagogical and everyday-relevant findings on WBS. WBS symposium, 21.04.2018, HSZG Görlitz (lecture).
Danielsmeier, V.: Towards a tailored support for Williams Syndrome. Learning from individual everyday life experience A holistic multiperspective Mixed Methods study. International Meeting on Williams-Beuren Syndrome "Building our Future". 10-11.11.2017, Genral Hospital La Paz Madrid (Poster).
Danielsmeier, V. (2017): Understanding Auditory Aversions in Williams Syndrome. A Longitudinal Mixed Methods Approach. International Meeting on Williams-Beuren Syndrome "Building our Future". 10-11.11.2017, Genral Hospital La Paz Madrid (Poster).
Danielsmeier, V. (2017): How do people with Williams-Beuren syndrome experience fears of noise? 13th Berlin Methodological Meeting Qualitative Research, July 21-22, 2017, Freie Universität Berlin (Poster).
Prosetzky, I.: Current pedagogical and everyday relevant findings on WBS - Insights into selected international research studies. Federal meeting of the Bundesverband WBS e.V., May 21, 2017, Sternhotel in Willingen (lecture).
For further information see TRAWOS Institute
For more information see TRAWOS Institute
Public lecture series "The Federal Participation Act and its (possible) consequences for the region", Zittau/Görlitz University of Applied Sciences, winter semester 2017/18, flyer, access to the video recordings of the lectures is only possible via OPAL and for HSZG students
